http://forum.hdsa.org/ HDSA is a national non-profit voluntary health agency dedicated to finding a cure for Huntington's Disease. en-US Thu, 23 Feb 2012 04:31:39 +0000 http://bbpress.org/?v=1.0.2 q http://forum.hdsa.org/search.php http://forum.hdsa.org/topic.php?id=131#post-474 Tue, 21 Feb 2012 18:59:02 +0000 hdsa 474@http://forum.hdsa.org/ <p>I suggest you call 1 800 345 HDSA or write to <a href="mailto:hdsainfo@hdsa.org">hdsainfo@hdsa.org</a> for some assistance or reference to resources </p> http://forum.hdsa.org/topic.php?id=131#post-473 Tue, 21 Feb 2012 18:53:26 +0000 Randy 473@http://forum.hdsa.org/ <p>I'm 26 years old, I've tested positive for HD, with no physical symptoms. I hear voices, and when it's bad, I believe that they are real (since they are voices that are friends, family or other voices that I'm familiar with), and I believe it's another reality that I've tapped into through drugs. I'm a recovering alcoholic/addict, with 13 months and 8 days sober, and the voices haven't gone away. They are mild until I have caffeine. When I have caffeine, sometimes they get very bothersome, and won't turn off, and some days I can go all day without them. I find myself embarrassed, anxious, paranoid, depressed, disgusted, disturbed, etc, etc, whenever I'm out in public or otherwise engaged in any type of activity outside my comfort zone. Everyone has told me that the voices are not real, and people educated about HD say the voices are psychiatric symptoms of HD, and my diagnosis of schizophrenia is a "soft" symptom of an early HD stage. Does anyone positive for HD, especially people who have (at least) tried drugs, have these types of delusions? What have you been told about them? Anything that helps you deal? Are they common in HD+ patients? </p> http://forum.hdsa.org/topic.php?id=51#post-472 Thu, 16 Feb 2012 03:33:37 +0000 Millie 472@http://forum.hdsa.org/ <p>Bless you too sgreene<br /> I often wonder why did this horrific disease hit my family so hard and then I look at what it has taught me about people and I realize I`ve learned and have loved so deeply because of H.D. I have loved and have lost so many to this disease, but it has taught me so much about unconditional love.<br /> Oh believe me I`ve met plenty of mean nasty people along the way, but I have also met some amazing loving people. And when you find the great amazing ones you hang on to them and let them know they are amazing and let the rottens ones disapper.<br /> I pray nightly for the public to understand what H.D. does and pray that families and caregivers will alway do what is right when providing care.<br /> I also pray that God will protect it<code>s H.D victims by allowing them to feel comfort in knowing that they are loved. I believe feeling loved is the most important, it</code>s right up there with being happy.<br /> God Bless all of us who suffer from H.D. give us the love, understanding and strenght to go on.<br /> Although it has been a slow progression for improvement in the H.D community it is improving. I think we all need to share our stories to anyone we feel is deserving. </p> http://forum.hdsa.org/topic.php?id=129#post-470 Mon, 06 Feb 2012 21:46:35 +0000 Mike Ratel 470@http://forum.hdsa.org/ <p>Folks, I have released another clip from On Your Mark, Get Set, MOW! which is my documentary which will show how the sport of lawn mower racing is on the cutting edge in the battle against HD. </p> <p>Please take a MOWment to watch the clip here:<br /> <a href="http://www.youtube.com/watch?v=v1Y1s5dwuvM" rel="nofollow">http://www.youtube.com/watch?v=v1Y1s5dwuvM</a></p> <p>To watch other clips and media opportunities I have had speaking HD, lawn mower racing, and my film as well as opportunities to support the project please have a look at:<br /> <a href="http://www.kickstarter.com/projects/1234582119/on-your-mark-get-set-mow" rel="nofollow">http://www.kickstarter.com/projects/1234582119/on-your-mark-get-set-mow</a> </p> http://forum.hdsa.org/topic.php?id=94#post-469 Sun, 05 Feb 2012 16:23:44 +0000 Jp101010 469@http://forum.hdsa.org/ <p>lori , this forum seems to be somewhat unactive , unfortunately.. but there is posts being answered and conversations taking place within the HD community on Facebook , a page called "HDSA Advocacy....Please Join Us!".. and many other HD pages on facebook. I was excited to have found this forum initially but was discouraged when i found out there are only a couple of people on here regularly.. Also "HD buzz" or the "Pipeline" is a stream of current medical advances.. 2012 marks the first year of human trials on gene silencing , one of the most promising cures for huntingtons we have ever seen.. so that being said , now is the time for you and hubby to dive in to the HD community so that as soon as gene silencing is fast tracked , it can become available to your husband so he can live symptom free . Also have you or hubby been to an HD support group or a local HDSA chapter event? </p> http://forum.hdsa.org/topic.php?id=94#post-468 Thu, 02 Feb 2012 09:20:57 +0000 sgreene 468@http://forum.hdsa.org/ <p>This might not help since the post is so long ago but I thought I'd chime in. I have the same CAG count as your husband. Im 50 years old with a few symptoms mostly mental with me. My mom had a count around 47 and she lived the a ripe old age of 72. The last 10 years of her life were with advanced HD but she made the most of them by still doing everything she did before. I can only hope I have some of her fighting spirit in me:)) </p> http://forum.hdsa.org/topic.php?id=51#post-467 Thu, 02 Feb 2012 09:06:33 +0000 sgreene 467@http://forum.hdsa.org/ <p>I've lived with this disease all my life watching all my relatives on my mothers side pass away from HD, Great grandmother, great aunts and uncles, grandmother and just 2 years ago my own mom. I've never known one second without HD taking away someone I love and care about.<br /> I just turned 50 and before my mom passed away I was was diagnosed with HD too. I fight with depression and anger because I know what is coming because seeing my other family members suffer for so long. I try to just keep pressing on but I am running into problems with people not understanding my deteriation in my abilities and personality over that last couple of years or so. Currently I don't have a lot of visible symptoms but sometimes I wished I did so maybe people would understand my inability to do the things I used to be able to do such as sewing, painting, gardening, and any type of physical activity.<br /> I guess I just wanted to say I can understand the family members and caregivers who take it upon themselves to try their very best to make living with HD go as happily, smooth and painlessly as possible and I can also understand the person with the disease who doesn't know or realize that they are not acting like their old selves but doesn't have a way to get oneself back to normal.<br /> God bless all who are touched by this disease. </p> http://forum.hdsa.org/topic.php?id=121#post-466 Tue, 31 Jan 2012 05:24:03 +0000 Anthony W 466@http://forum.hdsa.org/ <p>I think bits from the Dr. Phil show yesterday on the East Coast would be a great thing to add if possible. The show was about the young girl in Detroit who died of JHD but was being harassed by a neighbor before she died. Her mother died of HD a couple of years ago. This was the most powerful Dr. Phil show I've ever seen. He was visibly shaken during and after the show. </p> http://forum.hdsa.org/topic.php?id=128#post-465 Mon, 30 Jan 2012 23:54:05 +0000 Mike Ratel 465@http://forum.hdsa.org/ <p>Jessica, I have forwarded your inquiry to a few HD medical professionals I have email addresses for. I hope that they can help you.</p> <p>Best of luck. </p> http://forum.hdsa.org/topic.php?id=127#post-464 Mon, 30 Jan 2012 21:01:18 +0000 Mike Ratel 464@http://forum.hdsa.org/ <p>Millie,<br /> It is reasonable to expect that DVDs of the film will be offered for sale at some point so you can watch On Your Mark, Get Set, MOW! regardless of if you are in Warsaw, Poland or Warsaw, Virginia. If you were speaking of getting involved in lawn mower racing a good place to start for information is <a href="http://www.letsmow.com" rel="nofollow">http://www.letsmow.com</a>.</p> <p>I have released another clip from my upcoming documentary which will show how the sport of lawn mower racing is on the "cutting edge" in the battle against HD. Clips from the film can be seen under the Updates tab at <a href="http://www.kickstarter.com/projects/1234582119/on-your-mark-get-set-mow" rel="nofollow">http://www.kickstarter.com/projects/1234582119/on-your-mark-get-set-mow</a><br /> Thanks </p> http://forum.hdsa.org/topic.php?id=128#post-463 Mon, 30 Jan 2012 01:03:26 +0000 studentJess 463@http://forum.hdsa.org/ <p>Hello friends! My name is Jessica Gransee and I am a student at the University of Wisconsin studying education w/ a backing in special needs. I am working with a partner and we are to conduct a brief interview with a person/family that has experience with Huntington Disease. The requirement is for a medical aspects course that is in an accelerated format and only last 8 weeks. So if anyone is willing to respond to me in the next week or so it would be greatly appreciated! You can email my student account <a href="mailto:GranseeJL06@uww.edu">GranseeJL06@uww.edu</a> if you are willing to participate in an interview via email or we could also do a conference call. The information given will be for professional/educational use only and names will be changed for privacy. We have briefly researched the topic of chromosome/genetic disorders and are curious how a family or person would explain it has affected their life/lives. This is not a joke so only serious inquiries please. I in no way want to offend or disrespect anyone or anything in association with this organization. Our goal is to better understand Huntington Disease and the families' that live with it. </p> http://forum.hdsa.org/topic.php?id=127#post-462 Sat, 28 Jan 2012 02:11:23 +0000 Millie 462@http://forum.hdsa.org/ <p>Good Luck Mike, I am rooting for you. If I lived closer I`d like to watch maybe even participate. </p> http://forum.hdsa.org/topic.php?id=127#post-461 Fri, 27 Jan 2012 18:45:50 +0000 Mike Ratel 461@http://forum.hdsa.org/ <p>I have added a radio interview and a newspaper article where I talk about HD, the sport of lawn mower racing, and my film. Have a look and a listen if you have a minute.</p> <p><a href="http://www.kickstarter.com/projects/1234582119/on-your-mark-get-set-mow?ref=city" rel="nofollow">http://www.kickstarter.com/projects/1234582119/on-your-mark-get-set-mow?ref=city</a> </p> http://forum.hdsa.org/topic.php?id=117#post-460 Fri, 27 Jan 2012 15:26:59 +0000 hdsa 460@http://forum.hdsa.org/ <p>Please call 1 800 3454372 or write to <a href="mailto:hdsainfo@hdsa.org">hdsainfo@hdsa.org</a> to get assistance </p> http://forum.hdsa.org/topic.php?id=126#post-459 Thu, 26 Jan 2012 03:12:36 +0000 Millie 459@http://forum.hdsa.org/ <p>Never heard of it. </p> http://forum.hdsa.org/topic.php?id=117#post-458 Thu, 26 Jan 2012 03:08:19 +0000 Millie 458@http://forum.hdsa.org/ <p>I wish I could help you, unfortunatly I don`t have an answer. Your mother is a saint. The state hospital maybe an option. Sad thing<br /> about this disease is that no one is really much help, the system for taking care of Huntingtons patients sucks, most of us are so busy taking care of our affected loved ones that we don`t have the time to take on state or federal goverment. Have you tried the HDSA phone number? Some states have facilities for H.D. You may have to wait for your father to get worse before his abuse towards your mother disappers.<br /> Maybe next time mom will just have to not pick him up...........it is sad and really hard to do, but it may have to happen. It does not mean she cannot visit him often, or even take him back home a yr or two later. I suggest if she does do that she get POA at minimun. It is pretty sad to think that the H.D social worker is not more helpful.<br /> Best of luck to you and your family....stay strong. God Bless and please post the results.<br /> P.S. I really believe the H.D person is most abusive to the person they love the most, so he may not be a problem in a care facility. </p> http://forum.hdsa.org/topic.php?id=127#post-457 Wed, 25 Jan 2012 06:40:37 +0000 Mike Ratel 457@http://forum.hdsa.org/ <p>Folks, my documentary On Your Mark, Get Set, MOW! which will show how the sport of lawn mower racing is on the "cutting edge" in the battle against HD is nearing completion. It has been submitted to the 2012 DC Independent Film Festival as a work in progress and my editor and I are scrambling to finish it in the event the film is selected. </p> <p>I have launched a kickstarter campaign to raise a small amount of money in order to pay my editor and other post production expenses. Please view the film's trailer and consider a small donation to the kickstarter campaign at <a href="http://www.mowermovie.com" rel="nofollow">http://www.mowermovie.com</a>.<br /> Thank you, </p> http://forum.hdsa.org/topic.php?id=117#post-456 Wed, 25 Jan 2012 00:11:32 +0000 PFEIFFELTOWER 456@http://forum.hdsa.org/ <p>Anyone out there with some similar experience or any kind of advice? It's been a month, no one has posted a response to my posting and, unfortunately, we're still in the same position--desperate to get my father into long-term care, but with nearly nowhere to go. I would be so grateful to hear from someone on this--surely my father's case isn't that unique. </p> http://forum.hdsa.org/topic.php?id=126#post-455 Sun, 22 Jan 2012 03:45:56 +0000 HDWIFE 455@http://forum.hdsa.org/ <p>Just wondering if anyone is trying this? or if anyone has heard if it will help HD?</p> <p>://www.cbn.com/media/player/index.aspx?s=/mp4/LJO190v1_WS </p> http://forum.hdsa.org/topic.php?id=121#post-451 Thu, 12 Jan 2012 00:47:26 +0000 Millie 451@http://forum.hdsa.org/ <p>JP I was able to get in. Wow what a fantastic video and web link. I saved the link in my favorites. I<code>m not great with computers but in the near future I</code>ll work on getting some pictures for your project.<br /> Thank you! And I wish you success. </p> http://forum.hdsa.org/topic.php?id=121#post-447 Sat, 07 Jan 2012 22:20:14 +0000 Jp101010 447@http://forum.hdsa.org/ <p>Millie , I checked the link from my original post- its working on my end? some browsers require the www. in front of it. Please let me know if you still have trouble.</p> <p>I am hoping its something everyone will do to really come together and make this the most in depth , broad spectrum HD Awareness video possibly ever made. and this all depends on every single individual within the countless HD Families across the world.Their participation is crucial to this video reaching its potential. </p> http://forum.hdsa.org/topic.php?id=121#post-446 Sat, 07 Jan 2012 01:19:21 +0000 Millie 446@http://forum.hdsa.org/ <p>Jp, I like that idea. it sounds like something anyone could do, but I copied and pasted the link above nothing shows up. </p> http://forum.hdsa.org/topic.php?id=121#post-445 Thu, 05 Jan 2012 23:42:12 +0000 Jp101010 445@http://forum.hdsa.org/ <p>I am pulling together a special project : a short video to raise awareness of HD / JHD , Better Legislation affecting JHD- HR 3737 &amp; and the HD parity act 2011 , Walk of Hope in NY 5/26 and the ALN HTT RNAi Cure on the Horizon. My hope is that the video will go viral , speaking to those who may not even know what HD is or how they can help. Only once we have reached the masses , will the masses be able to help.<br /> I am not asking for any monetary donations , just for people affected by HD to contribute their photos and or video footage. Specifically i envision everyday people in still photos holding a hand written paper with the statement " I have Huntington's" or " My wife died in 2002 from Huntington's" " I am living at risk for Huntington's" etc<br /> If you feel more comfortable , or if you want to remain anonymous you can hold this statement in front of your face .<br /> i really need everyones help with this in order to make it happen.<br /> I have created a FB page for this specifically<br /> facebook.com/HDawareness4thecure2012<br /> Thanks everyone! </p> http://forum.hdsa.org/topic.php?id=120#post-444 Wed, 04 Jan 2012 17:52:57 +0000 Jp101010 444@http://forum.hdsa.org/ <p>Hello everyone , I am working on a project and i need your help. I am making an HR 3737 (To amend the Federal Food, Drug, and Cosmetic Act with respect to fast track approval) awareness video in respect to HD specifically and the RNAi cure.My hope is that it will go viral and help gain some support for the bill. anyone who is at all affected by HD who are willing to contribute please email me at <a href="mailto:ruizwedding10102010@yahoo.com">ruizwedding10102010@yahoo.com</a><br /> I want everyone to vote for HR 3737 , not just those affected by HD.. I feel in order to make this happen we need to show people exactly why it is so important to do so. I am in need of still photos &amp; photos of people holding pieces of paper with statements like "I have Huntingtons , I am waiting for the cure" "My father died from Huntingtons waiting for the cure" "my daughter has huntingtons and can not wait any longer for a cure" .. anyone with footage of themselves or loved ones who would be willing to share it with the world would be much appreciated. If you are more comfortable with holding you statement over your face that is okay too. Please share this with all of you HD Family and Friends.. without it this video may never reach the people who will make or break the vote.<br /> Most bills dont make it past the point that HR 3737 is at now , we can not let it fail because friends , parents, siblings and children are banking on this bill for their future. </p> http://forum.hdsa.org/topic.php?id=116#post-443 Wed, 04 Jan 2012 17:47:21 +0000 Jp101010 443@http://forum.hdsa.org/ <p>Thank you Millie. I think you have every right to feel however you want to/do whatever you want or need to in respect to any aspect of having HD and I also would hate to think that the information they gain from the whole process is skewed because of the "right answers" .. I am choosing to give the "right answers" and explain after i get my results &amp; cag numbers that I felt the ability to know my own test results was in jeopardy and so i gave the "right " answers and this is how i really feel and so on .I will also explain that most of my stress during testing is for this exact reason : holding the results hostage until they see fit.I know I am not crazy , suicidal , irrational or at risk of severe depression - But will the person asking the questions take into consideration that symptom searching and prioritizing life &amp; end of life plans are all a normal part of the HD journey.If you go by textbook signs of suicidal tendencies the wrong person can come to unrealistic conclusions... not fair<br /> I have read some people stories where the center of excellence told the person (who was honest) to go for counseling for 3 months and we will review it again and see if your ready. That is complete Bullshit in my opinion. I am so glad there is other people out there that understands this whole process. If I had the money to get health insurance i would just go to my neurologist and get what i am looking for instead of going through 3 months of stress. I dont want to seem ungrateful for the centers of excellence , I just think they might want to encourage honesty for data collecting purposes by giving you whats rightfully yours without restriction. </p> http://forum.hdsa.org/topic.php?id=116#post-442 Tue, 03 Jan 2012 01:27:06 +0000 Millie 442@http://forum.hdsa.org/ <p>I sure understand how you feel JP when you say "all the right answers" When I told them that if I tested positive I would move away so that my family would not suffer they seemed concerned. It is horrible to feel that you cannot be honest when talking to the medical profession. I took the test about 25 yrs ago and they had a window/mirror like you see on crime movies where they watch you and you can<code>t see them. They asked me to build something with tinker toys while they watched me from another room to see if I had difficulty using the tinker toys then they asked me what it was I build and they even took a picture of it and told me to give it a name. They also had me do math problems, name presidents, count backwards from 100 while timing me and asked me to repete stories back to them that they had read to me earlier. To this day can not name all the presidents or count backwards from 100 fast while being timed. I suffered a mental breakdown with the testing. Back then it was a two days of psych and knowledge testing. The testing seemed to be for them to gain knowledge. I did HORRIBLE on the tests, I think everyone thought I had it. Much to everyones surprise I tested negetive. I cried so hard my whole body was shaking from lack of sleep and relief. And someone in the room asked why I was crying..... I said now I know it okay/normal to have emotion,to cry for joy,to get stressed and have difficulty learning and remembering. I was one of the last to test under those circumstances at least that what I</code>ve been told.<br /> I`ve heard it has changed alot and that the testing is pretty much blood work. But I do think that is important to be honest so that the medical professionals can continue to learn and to be able to offer services to those who test positive or negetive. I tested negetive and I need help coping with the disease.<br /> GOOD LUCK with testing I hope you let us know how it goes. </p> http://forum.hdsa.org/topic.php?id=119#post-441 Tue, 03 Jan 2012 00:40:06 +0000 Millie 441@http://forum.hdsa.org/ <p>Here`s hoping that 2012 will bring comfort to all people struggling with Huntingtons. 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For years my wife tried to increase her life insurance policy but was denied due to the fact she was at risk for HD. No more then one week after she received her negative result after going through testing, her insurance company had the nerve to call her at home explaining how they were glad there was good news and asked her if she would like to increase her policy. They treated her like she was a long lost family member.I was shocked to say the least at their behavior. How in the world they got this information, God only knows.<br /> JP, I wish you well and will pray for you as you go through testeing. </p> http://forum.hdsa.org/topic.php?id=118#post-438 Mon, 19 Dec 2011 19:23:36 +0000 Jp101010 438@http://forum.hdsa.org/ <p><a href="http://www.youtube.com/watch?v=rdjBTkuzQBs&amp;feature=colike" rel="nofollow">http://www.youtube.com/watch?v=rdjBTkuzQBs&amp;feature=colike</a><br /> This was uploaded in 2009 and I am wondering if anyone has seen this or knows anything about it? </p> http://forum.hdsa.org/topic.php?id=61#post-437 Mon, 19 Dec 2011 18:26:09 +0000 Jp101010 437@http://forum.hdsa.org/ <p>Lisa Marie , I totally understand your feelings on this.. its hard to live a life and be the person you are and all of a sudden a piece of paper tells you that you are in fact not living the life you had and you are not the person you thought you were- Here is this new life and new future , most of us discover who we are at an early age so at 26 its hard to re think everything. Maybe it would help you to feel you tested negative for a purpose? hey someone has to raise awareness and fund raise for a cure and because you tested negative maybe this is your purpose. I read an interesting article about how people living at risk can manifest symptoms if they truly believe they have it, even if they are negative for HD. The mind is a powerful thing so i do believe this is true. I hope you can find peace soon , and never feel guilty about not having the same reaction as someone else to a negative result. Its traumatic either way in my opinion </p> http://forum.hdsa.org/topic.php?id=116#post-436 Mon, 19 Dec 2011 18:13:40 +0000 Jp101010 436@http://forum.hdsa.org/ <p>I made an appt at USF with Dr. Sanchez-Ramos for predictive testing. I was able to find out about their self-pay cash program which only costs $300 (everything included) and the new option for a payment plan which is $500 total.<br /> There is a 3 month waiting list , which saddens me because it really puts a perspective on how many people in FL are going through the same thing at this very moment that i am.My Appt is for march 8th and already by just making the appointment i feel a slight relief. there is alot of anger (for me) in the fact that there are several difficult hurdles to jump prior to learning my own fate , knowing my own dna. especially the part where they have a neurophyscologist decide whether or not you should know your own results. That , in my opinion , is absolutely a violation of my rights as a human... HD is terminal with no known cure , so are some cancers- however you dont hear about oncologists who will only tell the patient their results if they feel that person can "handle it". and whats to stop a person from just giving all "the right answers" during this psych eval. I will be stressing more over giving the right answers so that i am not denied my results which is so ridiculous. My father does not know his status which i hope will not effect my ability to get my results..<br /> anyone else out there feel the way i do? </p> http://forum.hdsa.org/topic.php?id=87#post-435 Sun, 18 Dec 2011 03:57:47 +0000 PFEIFFELTOWER 435@http://forum.hdsa.org/ <p>Ahhh, such lovely thoughts and words--yes your life exists in us through your words and legacy. So nicely articulated. Thank You. </p> http://forum.hdsa.org/topic.php?id=61#post-434 Sun, 18 Dec 2011 03:54:15 +0000 PFEIFFELTOWER 434@http://forum.hdsa.org/ <p>Hello Lisa_Marie, I'm at risk for HD and, as it turns out, so is one of my closest friends from childhood--his mother has HD and my father has it. My friend tested negative for HD over a year ago. He's having a very similar experience to yours. His other friends, who don't really understand the scope of HD, couldn't understand why he wasn't feeling on top of the world over his diagnosis. I think the trauma of expecting it and witnessing its effects on family members takes a deep psychological toll--one which can not be easily reversed by a negative diagnosis in one's own case. I imagine it's something like that which victims of violent crime must feel--that they can never completely feel safe again. Hopefully with time, one comes to peace with it. Best Wishes. </p> http://forum.hdsa.org/topic.php?id=117#post-433 Sun, 18 Dec 2011 03:37:13 +0000 PFEIFFELTOWER 433@http://forum.hdsa.org/ <p>Greetings, I'm new to this forum, although unfortunately not new to HD. My father has been suffering from it for almost 27 years and my family's dilemma is this: My father periodically becomes psychotic and violent. This year, alone, he has been admitted to the local mental hospital three times after having attacked my mother (each time hitting her quite hard). My mother is nearly at wits' end trying to care for my father and each time he has gone to the County mental hospital, we have attempted to use it as a means toward having him committed to a long-term care facility. Each time, the County facility stabilizes my father and says he's good to come home. Our HD social worker at UC Davis insists that my father is a danger to my mother and that he should not be allowed to return home. Nonethless, the County facility bullies my mother and claims things like, "Fine, we'll give him a bus ticket to come home." Or, "Good, we'll put him in a cab and give the driver your address." It's unlikely that it its legal for them to do any such thing (although probably not illegal for them to say they'll do it) but it works every time--my mother goes and picks him up. Moreover, if they find he's good to discharge, insurance coverage stops and my mother comes on the tab at $6000 per day. </p> <p>Does anyone know of mental or health code that would protect my mother in such a situation? I would like to brandish some legalese for the mental hospital to show them it's their responsiblity to keep my father until a long-term facility can be found for him, becuase it's otherwise not safe for him to come home (i.e. not safe for my mother). Again, this per our HD social worker at UC Davis. Short of having some law on our side, I don't know how we can win this battle (we've lost it already several times--he's sent home and within months he beats my mother again). Of course, I realize my mother could press charges against my father and have him taken away thus, but she's unwilling to do that. </p> <p>We're in the State of California, FYI. I imagine others out there have had similar experiences? What does one do? (I have to add, the other aspect to this purgatory, is that because HD is a medical condition, mental facilities often reject him, while normal nursing facilities also reject him because of his violent and psychotic history--we don't know where to go!) Thanks for any information you may have, FELIX. </p>